When something is wrong, and you just know it, the worst thing that can happen is that no one will believe you.

debi lewis and her daughterWhen Debi Lewis’ daughter Sammi was born with a confounding set of digestive and respiratory concerns, she became the subject of Lewis’ research, writing, and worrying.  The experience made Lewis conscious of the devaluing of parental instinct and expertise in the eyes of the medical establishment. She grew curious about the experiences of other parents whose children were in similarly murky medical crises, with no clear support group available. In the movement from confusion to diagnosis to misdiagnosis, acting on orders sometimes meant acting against instinct. Through nine years and through varying diagnoses, Lewis takes her fury and metaphorically grabs the doctor’s white coat by the lapels.

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