To protect the privacy of my family, I have to be vague, for which I hope you will forgive me. I’ve always been very open about the heartache of my daughter Sammi’s first eight years: the confusion and the instinct I had to push through it, the fear I had about her breathing and eating, the confidence I somehow found inside me to urge all of us forward to a real resolution to her challenges. As much as was age-appropriate, I have always asked Sammi what she felt comfortable sharing through this blog and through other writing. She wants the world to gain something from her journey, as do I.
But this last month, the heartache and the excruciating journey have belonged to my parents, and it has been dramatic, painful, and frightening on a physical level for them and on an emotional and spiritual level for all of us. It kept me away from home for most of the month, away from my husband and daughters and a million miles outside my comfort zone. It did not and cannot end well, but that is all I can say about it without betraying their privacy. Continue Reading…
In 2010, when my daughter Sammi was diagnosed with eosinophilic esophagitis (a misdiagnosis, it turns out, but that’s another story), I suddenly had to learn to cook without dairy, eggs, soy, nuts, and wheat. The restrictions were part of something called the “six food elimination diet,” a way to tease out if any of those major allergens (plus fish, which we’d never eaten before so didn’t need to eliminate) might be making her sick. To describe this as a lifestyle change is not so different from describing the stay-at-home orders of our current pandemic as “taking some time for myself.” It was a smackdown.
I felt like I had a handle on dinner, initially. I could do some things with beans and rice and gluten free pasta that seemed manageable. What really messed me up was breakfast. At the time, Sammi was about to turn five years old. Living, as we did, with a grown man whose favorite breakfast was highly processed simple carbohydrates flavored with chocolate or artificial colors, doused in soy milk, meant that most of the time, the ample supply of cereal was our go-to breakfast, especially for Sammi and her then-eight-year-old sister, Ronni. The first week of the diet, I spent a dejected half-hour in the “natural foods” section of the grocery store, returning with some very beige cereals that made both kids groan.
Eventually, we settled on a few things that worked for Sammi in the morning, not without a lot of trial and error. In the years that have followed — long past the end of the six food elimination diet — I’ve come to realize that a lot of what she and I both like for breakfast is still either safe for that diet’s restrictions or pretty darn close. Every summer, as reminders show up in my Facebook memories of what it was like to plunge face-first into cooking for that diet, I realize that it changed my palate, my cooking style, and my approach to feeding my family. Not all of it was bad. Some of it has made us — dare I say? — a little healthier. I thought I’d share a few accidentally safe breakfasts for the six food elimination diet here for anyone who’s searching for what the heck they’re going to eat in the strange new culinary world in which they find themselves. Continue Reading…
I was newly a mother of two when a doctor – a kind doctor, a thoughtful doctor – told me that my new daughter would almost certainly end up in the hospital with every respiratory infection she got. Not a great idea, he said about twice-a-week daycare. Probably not, he said about baby-and-parent music classes. No, I don’t think so, was his answer to my hopeful questions about baby swimming, a smaller daycare, a playgroup. After two hospitalizations in her first five months, I believed him.
Through that first winter watched through front windows into an empty courtyard or through car windows into big sister’s preschool, my new daughter and I eyed the world with suspicion: me because it contained too many germs and her because nothing in it made her feel quite right. There was no sleep, no break, no time apart for the two of us to learn the beauty of missing each other and being reunited. There was just us, with the world outside the window a mystery.
I’ve written ad nauseum about food allergies and sensitivities on this blog. Every time I think I’ve perhaps written too much about those topics, I take a peek at my web traffic statistics and note that the most popular posts on the site, week after week, are the practical ones with guides for either the six-food elimination diet (avoiding dairy, soy, egg, nuts, wheat, and fish) or the chylothorax diet (avoiding fat). I imagine that these posts are most commonly read by people struggling to feed themselves or someone they love. In my heart, I wrote them for a past version of myself, up in the night searching the web for information that, quite simply, didn’t exist.
At the holidays — these winter ones or others throughout all four seasons — it is hardest to be someone with food restrictions. Whether it is my daughter, who had to be on those two diets (among several others!) over the first nine years of her life, or me — dairy intolerant and severely allergic to fish — our family is incredibly aware of the limitations imposed on our social life by these restrictions. In my wider family, I love people who are allergic to nuts, who are on anti-inflammatory diets for auto-immune diseases, who are recovering from eating disorders, and who are diabetic. In all likelihood, there are others in my family with dietary needs that they keep to themselves. Yet somehow, we all manage to eat together, in each other’s homes and at restaurants, without too much disruption.
In 2010, my youngest daughter, Sammi, was diagnosed with a disease called eosinophilic esophagitis. Though it turned out that this diagnosis was incorrect, we didn’t learn that for three more years. During the first year of her diagnosis, we had to eliminate dairy, soy, eggs, nuts, and wheat from her already-vegetarian diet. During that time, these ten foods became the most important staples in my kitchen, making me grateful beyond anything I had ever known before. If you or someone you love is following the “six food elimination diet,” these foods might be just the things you need, too. Continue Reading…