My Daughter Is Twelve and Four

swallow-my-sunshine-yellow-bowl

Earlier this month, my twelve year old daughter Sammi mused to me, as she rummaged through the refrigerator for a snack, that she was hungry all the time these days.

“I feel like I just always want something to eat!” she told me as she scooped refried beans into a bowl at the counter.

“That’s pretty normal for a kid your age,” I reminded her. “You’re doing your last big growth spurt right now.”

“Yeah,” she answered, sprinkling shredded cheese on her bowl of beans and sliding it into the microwave, “but this is crazy. By seventh period every day, I’m already trying to think about what’s left in my lunchbox to eat on the walk home! I just chew gum and try to make it for three more classes.”

I made some suggestions about keeping a small snack in her bag to nibble between classes, and she brought her bowl of beans and cheese to the counter to eat as she got started on homework.

Four years ago, I would not have recognized one thing from this scene: not her independence, not her strong shoulders or her thick hair, not my casual tone, and, most of all, not the fact that my daughter was making the equivalent of a full meal as an after-school snack.

Four years ago, a bowl of refried beans and cheese would have come home from school with her in a thermos, missing a few spoonfuls, and be dumped in the trash by dinner time when she still hadn’t finished it.

Four years ago, my relationship with Sammi was almost entirely composed of my trying gently to encourage her to eat, my trying not-so-gently to encourage her to eat, and my internal monologue that blamed everything that went wrong with her temperament to my failure to find exactly the right things for her to eat.

Four years ago, I didn’t really know my daughter at all. Continue Reading…

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Twelve Years in Music

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I’ve loved music since I was a very little girl. My parents owned a record store before I was born; their music collection was spectacular, including every emblematic song of the 60s with rare gems thrown in. My earliest memories of their records are of the Beatles’ “All Together Now,” with its b-side of “Hey Bulldog,” a song so dark that it scared me. I can picture the green apple on the record label. I can picture the carpeted floor beneath me. I can remember the spot between the couch and the record cabinet where I sat and carefully edged the records out of their sleeves.

Like most people, my most powerful musical memories take me right back into the moment, bringing with them the smells and images and sensations that were present when the memories embedded themselves. In his fascinating book about music and the brain, the late neuroscientist Oliver Sachs wrote, “Music, uniquely among the arts, is both completely abstract and profoundly emotional. It has no power to represent anything particular or external, but it has a unique power to express inner states or feelings. Music can pierce the heart directly; it needs no mediation.”

These ten songs represent powerful piercings of my heart over the last twelve years of parenting my daughter Sammi, which was — as mothers of medically complicated children know — a more physical, spiritual, and emotional journey than the one I’ve shared with my older daughter. Of course there is powerful music to remember with her, too, but this music below served as survival tools in unique ways for Sammi and I. Perhaps these tools will help others, as well. Continue Reading…

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Forget It, Or Don’t, Or Hold It Lightly

swallow-my-sunshine-chairIt was December, 2013, when we had that awful conversation, the doctor and my husband and I.

It was cold out, and my body wasn’t ready for it yet. That’s why my chin was quivering as I sat in the upholstered chair next to the window, cradling one phone while my husband stood alert in the next room with another extension in his hand. It was cold outside, and I didn’t have my winter metabolism running by then, so my hand shook. It shook so much that the paper in front of me was blank the whole time. I never wrote anything. At the end of the conversation, when the doctor’s excitement oozed through the phone because the missing piece might really fit in the puzzle this time, my paper was blank and my toes were tucked under my bottom in the chair, holding me tightly into the space where I was curled now, so cold, so cold because I was near the window, the winter window, on a frigid day. That’s why I shook. That’s why I shivered.

But actually, it turns out, it was November. Continue Reading…

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Musical Fences

She was a tiny bump in my belly, straining against my leggings, when I bought the fiddle.

I knew it would be years and years before I could bring myself to make a purchase this extravagant and this selfish just for myself. I knew I needed something to remind myself of who I was without her, without her sister and without my husband, and that when this baby was born and home, I would be overwhelmed and need the occasional escape. I went to several violin shops before I settled on this gentle, caramel-sounding fiddle, which I played in the musty basement practice room of the folk music shop.

I played Roaring River and Bumblebee in a Jar and Courting Days Waltz, and I knew the fiddle was mine. It was easy under my chin and pressed into the space between my thumb and my index finger. It belonged to me: four strings to fence me off from the loss of self. Continue Reading…

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