Tandem Tantrums

tantrum

I never felt alone again after someone else admitted to me that she didn’t know what to do.

By the time Sammi was three, I had established a work-from-home-parent setup in our new town. Her big sister was in the early years of grade school, and Sammi’s visits to the school every day by stroller brought both of us into a brand new world of other human beings. Living as we had in seclusion for the first years of her life — both due to medical necessity and then the secondhand isolation that came from it — I was unprepared for the beauty that came with speaking to other adults every single day. Many of the people I met were like me, pushing strollers with younger siblings to the playground each morning and afternoon. Our walkable public school made for a glory of impromptu social gatherings. It was only a mile from our previous home but may as well have been another country from it in terms of the effect it had on my own mental health. I was able to connect regularly with a variety of other parents for the first time.

Also for the first time, I heard complaints about their children that echoed my own. One winter afternoon when I had managed to cram Sammi into winter clothing and push her rickety stroller the four blocks to the first grade exit door where her sister would come out, another parent with a baby in a stroller and a three year old boy dragging behind her waved at me. Her daughter and my older daughter Ronni had established a mutual admiration society which would eventually lead the way to one of the best friendships of our family’s life, but truly, it began for me when this mother answered my “How’s it going?” with the following lightning bolt of connection:

“How’s it going?! I’m done. I give up. I’m taking him in to be assessed for sensory issues. I can’t take this craziness anymore.”

Her son refused to wear boots. Or a coat. Or socks. I may have the details wrong, but I heard in it the same line of edge-balancing I felt in my time alone at home with Sammi. Sammi would not get dressed. Sammi would not go to sleep. Sammi would not eat. Sammi would not leave a place we were, or enter a place we needed to be.

She was also, like my new friend’s son, breathtakingly cute.

I couldn’t see the struggle in my friend’s son’s round, gorgeous face. No one could see my blond angel for the often furious child she was at home. It was invisible and, as a result, so was my real state-of-mind most days when I entered that playground. I waved, I connected, I made plans, I shared bags of grapes. Under the surface, I was desperate not to go home to another evening of screaming tantrums that reminded me so terribly of the sleep training that nearly killed her, and me.

Sammi’s tantrums regularly included self-harm. She smashed her head, over and over, into anything she could find — hard edges, hard floors, wood tables, toys. I wondered if she was trying to finish what her crazy cardiac anatomy had started.

That friend’s admission that she, too, fought the demons in her head — and the one small demon who lived in her house — changed my whole approach. When I found that she had years of experience in mental health services and even that didn’t keep her from feeling the level of frustration I did, it cemented in me the need to reach out and have things assessed. Once again, I called in the experts. Once again, I admitted that I couldn’t fix things.

Only this time, I was not alone.

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Laid in Arms

hospitalDavid, Sammi and I slid into the hospital the morning of her first surgery the way a reluctant toddler comes down a slide. All sorts of practicalities handled, bags packed for a hospital stay, all that remained was the hour of waiting in a room with a baby we might never see again.

If that sounds maudlin, that’s because it was. The risk to this surgery was smaller than most cardiac surgeries, but there is always a risk to surgery. The doctors would slice into my smooth, perfect, luscious baby’s back, pull her ribs apart, and decide which branch of her aorta to clamp and remove. The very thought of it made me weak. And yet, my job was to hand her over to these doctors who didn’t know anything about who she really was. They didn’t know she could sing. They didn’t know how much her four year old sister adored her. They didn’t know about my ambivalence about her for the first months of her life, ambivalence that I worried would make the universe believe that I didn’t want her, after all, and maybe it would take her away from us to punish me for it.

We passed Sammi around the pre-operative room — David and I, his mother, his sister, and her husband. After I refused to give her to a strange doctor to take away, screaming for me, they gave her a shot of Versed, an anti-anxiety drug that made her loopy and cross-eyed. When the anesthesiologist came to take her away, she waved at me as she was carried down the hall in his arms.

Once she was out of sight, I fell sobbing into the arms of my sister-in-law. She and I had never been close, but sometimes, the right person at the right time becomes a lighthouse. She was solid and soft at the same time. I think I fell on her because she was the very nearest person, and all my hold-it-together just dissolved once Sammi was truly and in every way out of my hands.

The details of the day — the waiting, the surprise visit with pastries from David’s aunt, the moment when the surgeon came to tell us that everything went well — these are the uninteresting snapshots of someone else’s life, the ones we look at politely but cannot connect to our own. The universal is in the humanity of kind people when you need it the most. That hug. Those pastries. David’s hand on my shoulder when we learned that they were closing her incision, and my memory flash of his hand on my shoulder as Sammi had been born, with me flayed on an operating table, paralyzed, unable to help her. She’d lived through that. She would live through this.

I couldn’t do anything to keep Sammi alive except to go and find the people who knew how, and to lay her in their arms.

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Disconnect

There are things you just can’t do in the trenches of a war, any kind of war. If you try to do them anyway, it will feel like method acting — a pantomime, a view of yourself from above, a dream about what you’re doing.

As we came to terms with the kind of baby Sammi was — easily sick, unable to fill her belly for more than an hour or two at a time, mysteriously unwell — things that other overwhelmed new moms could do became unavailable to me. I had to quit my fantastic job in order to keep Sammi out of daycare, but we could not join mother & baby groups or go to baby yoga classes or anything else that involved lots of children and their germs. I left work in January, and we spent a long winter indoors.

People told me how lucky I was to be home with my daughters. It made me want to run away, forever.

I didn’t want to be home with my daughters all the time, and I also didn’t want to be the kind of person who didn’t appreciate being home with my daughters. Many years later, when they were in elementary school, I would finally recognize that luck, along with the utter joy of walking them back and forth to school, but when they were newborn and three, it was a prison sentence.

I had nothing to talk about with other mothers of newborns, I felt, which worked out fine since I had exactly one friend with a baby. She was wonderful, but my resentment of her baby’s capacity for sleep was like a thick tar roping through our relationship. We had a connection, but sometimes we’d run into that tar, my patience would snap, and I’d feel unjustified in telling her why I was so angry — so I wouldn’t tell her. I’d walk back into the prison that was my house and watch Mary Poppins with Ronni, again, nursing Sammi for hours on the couch.

ConnectThere was another connection that wasn’t working out for me, and that was with Sammi herself. Ronni had been a hysterical newborn, comforted only by me — not even David could hold her if I was nearby. Her preference for me lasted until she was nearly two. Sammi, on the other hand, would go to anyone. At the end of the day, when David came home from work, I would hand Sammi to him, and he would drape her over his forearm and walk around the house while I, freed from touching her, would scramble to make a dinner. That was the year I felt the first urges to learn to really cook — a skill that would come to serve me very well. In the stolen moments after David came home from work, I learned my first soup and pasta recipes.

David was in love with her in a way that I could not be. I could not attribute it to her fussiness — Ronni had cried even as she nursed at that age — and in retrospect, I believe that my very soul was warning me not to get attached to her. I cuddled Sammi, nursed her, held her, changed her, never had one fleeting thought of hurting her — but I resented her so deeply that it shut down several tunnels to my heart.

From the outside, and even when I thought about it at the time, our first nine months look very much like I was a mother with postpartum depression. I was convinced something was wrong with my baby; I had horrific insomnia; I had middle-of-the-night panic attacks; I worried all the time that I would never feel like myself again. I now believe that while the hormones played a part in this, the larger issue was that my instinct to protect her and myself was clawing its way through my veins, screaming. It was giving me armor, which I was able to rip off only when I had the right weapons to fight our way through the battles.

Connection is another luxury, like love, which has a high price in a war. If your main goal is survival, you take with you only what you absolutely need.

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