Lemonade Out of Gluten-Free Lemons

grocery-cartSometimes, I just have to laugh at the way the universe answers the questions I haven’t even asked yet.

It’s half-way through the summer of 2017, and here I am, suddenly aware that I live with one foot in the summer of 2010. I spent that summer in a cloud of specialty flours: tapioca and arrowroot, garbanzo and white rice and coconut and and sorghum. I sprinkled xanthan gum like a gluten-free fairy into all the creative ideas I had for how to make food for my daughter, whose health challenges required that she cut out dairy, eggs, soy, nuts, meat, and gluten. During my deep-dive into specialty cooking for what I called the “joy-free” diet, I dreamed in recipes and grocery store trips. Along the way, I picked up several dozen grey hairs, but I also became an unwilling expert on food challenges.

Though my daughter’s health issues resolved without any need for her to continue with food restrictions, the knowledge I gained never went away. In some ways, it’s not unlike a spare tool in the garage; though we seldom need that particular odd-shaped wrench, the neighbors know we have it, and they can borrow it any time. Even though we may have bought that wrench to put together a hospice bed or to tighten bolts in a subfloor that collapsed beneath our feet — and seeing it brings back every memory of that awful time — we’re glad it’s going to use for someone else who needs it. That wrench — my reluctantly-gained knowledge — shouldn’t go to waste.

Because of this, my friends call me when they need to follow an unusual diet or avoid a common food. And because I want to make lemonade out of those gluten-free lemons, I always help. Always. Continue Reading…

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Raspberries, Mushrooms, Garlic, Plums, Peace

farmers-marketFor ten summers, with varying frequency, I’ve been taking my daughters to the Saturday Farmers’ Market. In more ways than I could have ever expected, it has saved our sanity.

We began going to the Farmers’ Market as a way to preserve the parenting energy my husband and I needed. He and I made a pact after our second child was born: each of us would ensure the other got to sleep “late” (read: 8 am) one day a week. He slept “late” on Saturdays and I claimed Sundays. On Sunday mornings, he packed our squealing, chattering daughters quickly into the car — sometimes in their pajamas — to go to Home Depot, which was sometimes the only place open on Sundays. There, he handed them paint sample cards to carry and let them touch all the doorknobs while he mused over the varying bolts and power tools that just might be required for his next renovation project in our old townhouse.

On Saturdays, I took the girls to the Farmers’ Market. It opened at 7:30 am, and some Sundays, we parked our car in the tall parking garage overlooking the Market and watched as the farmers set up their stands. Had we stayed home, I would have been aggressively shushing them, desperately trying to give their father the sleep he’d earned yesterday in the dawn at Home Depot. Out of the house, I somehow discovered the reserves to be patient.

“Look,” I’d say. “Look at all the flowers in that truck!” Continue Reading…

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Broken, Brittle, Patched, Softening

babysammiShe was outside my body for only a few moments before someone was suctioning her throat. I was paralyzed on an operating table ten feet away and I could hear the sound of the suction tube interspersed with the sound of her newborn cries.

“Listen to her cry,” the midwife, at my side since the start of the c-section, said encouragingly. “That’s a solid cry. She’s strong.”

She was six weeks old when she had her first bronchoscopy, 13 months old when she went under general anesthesia for the first time, and fourteen months old the first time a doctor opened her body up and laid an expert hand on her tiny aorta.

She was four years old when she started having regular endoscopies. She was five years old when she started remembering the road to the hospital and asking me if today was a day she’d go to sleep there.

She was eight when, finally, they fixed what was wrong.

She was nine when the bullying started. Continue Reading…

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I Don’t Want to Write About Politics

politics-is-everythingI don’t want to write about politics, but every piece of my life is controlled by it.

I woke up Friday morning and realized my high-school-aged daughter had slept through her alarm. Her high school offers tremendous opportunities for academic and extra-curricular rigor, but if she wants to be a member of the honors society (a prerequisite for her preferred college admissions), she also has to do community service and show some proof of outside-of-school leadership. Thursday, she went to school all day, helped teach at her religious school, and then attended a meeting of a task force at our synagogue, returning home at 8:30pm to begin her homework. Educational policy has set this system up for kids like my daughter, a hamster wheel of achievement that burns kids out by the end of their senior year. Politics made her exhausted today.

When I came downstairs Friday morning, my younger daughter sat at the kitchen counter watching YouTube videos and eating breakfast. Though she seems healthy now, the years of worrying about her growth curve make my furtive glances at her food choices an instinct. I note the volume and count the calories in my head, inventory her planned activity for the day, and check myself; she’s fine. A part of her history stems from misdiagnosis her doctors made and for which they never apologized, a reality that I suspect comes from their fear of lawsuit. That misdiagnosis will stay on her medical chart, making her vulnerable forever to the caprices of health care legislation. My 11-year-old may be doomed to a life of wildly overpriced health insurance. Politics will someday make her — or keep her — sick. Continue Reading…

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We Know The Things

peas

I have never identified so closely with something written by another mother as I identify with a Mother’s Day essay written last year by Ellen Seidman of LoveThatMax.com.

Entitled, “I am the person who notices we are running out of toilet paper, and I rock: A Mother’s Day tribute to moms everywhere,” this essay includes Seidman’s lists of all the practical, life-improving practical things she notices in her own home. Among things like snack food and glitter and glass-cleaner are also the things like “shoes that fit” and recent family photos and storage for the growing collection of tiny toys from birthday party giveaways. Ellen, like most mothers, also notices uncharged electronics and plugs them in, and she realizes the vegetables in the fridge need to be used before they spoil, and she remembers to procure a gift for the next graduation party her family will attend.

In short, Ellen is a parent.

For most but not all of my female friends with children, Ellen represents in her blog post the inner workings of their minds at all times. Without question, many dads I know have a similar inner monologue, and Ellen notes in her blog that her husband has his own list going. In my house, actually, my husband notices the dwindling toilet paper supply long before I do, but I’m more likely to notice the absence of roasted seaweed, clementines, and red delicious apples before he does. Still, I definitely hold more of the practical, hands-on requirements of child-rearing in my head than he does.

In response, my husband has done a remarkable job thinking ten years ahead of me. When our daughters were born, he set up college savings accounts. He remembers to fund them, too. He handles detailed paperwork like school and religious school registration, health care savings accounts, vehicle research for our current one-car-every-decade-and-a-half car purchasing plan, mortgages, and managing things like making sure the roof isn’t falling in and, if it is, selecting a good roofing company with a good reputation.

And I buy the frozen peas.

Because of this division of labor, when I am forced to consider anything further than a few months away (“does she need new sandals for this summer?”), I find myself out of shape and ill-equipped for the task. I have a talent for dealing with this very moment, and that talent has been honed more than I’d care to have honed it in operating rooms and hospital bedsides over the last dozen years. I know how to throw resources into this very moment far better than how to plan for a moment in the distance. However, as health care plans for this country show a clear path toward ruin for my children, I was forced to get out of this moment and think about what might come next. Continue Reading…

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