Author Archives: Debi

Across the Border

fromthebackI’ve been thinking about resolution and falling action, lately.

In any compelling story, there is a natural building of intensity that leads, as we all know, to a climax. A couple searches for each other, meets, falls in love, and commits or separates, and they’re left different, marked by their experiences. Or: a world is beset by confrontation and battle, factions emerge, one side is victorious or decimated, and a new world is born. Or: a child is born to a yearning mother, grows sick, struggles, stumbles, regains her footing, and is cured, revealing mother and child older, changed, and almost unrecognizable.

That’s the resolution. What happens next? What is in the falling action of my story, the third story, the one with a once-sick now-well daughter, and a once-frightened now-what mother?

My daughter is eleven now, almost three years past her final surgery, two-and-a-half years past the time she first began eating well, two years past her dismissal from all her specialists, two years past the first major gains in height and weight she’d had since her babyhood. I haven’t had reason — real reason, justifiable reason — to worry about her health in the last two school years.

It has been, in many ways, like becoming a mother all over again. Continue Reading…

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The Hands and Feet of Napping

meshugalunchWhen my daughters were little — five and two, perhaps — and past the age of napping, I sometimes found myself desperate for any way at all that I could get even a little bit of mid-day sleep. I cleared the lunch plates of their detritus of blueberries, macaroni, and blobs of yogurt, feeling the lethargy settle on me and press my eyelids down even as I heard the first gleefully-shouted requests to go to the park. No way, I thought. No park. I can’t even imagine it. The coats alone…no.

In this, I’m sure I was no different than millions of other at-home moms who begin their day at 5am and race through it until they collapse, bleary-eyed, into their beds at night. These other mothers almost certainly have their own strategies for recharging mid-day; I have friends who used anything from “quiet time in your room” to a walk toward the nearest coffeeshop. I tried some of these things but nothing really worked. If I insisted they stay in their rooms, the constant squealing, questions about “how much longer?” and requests for snacks kept my frustration at a low boil — not very restorative. If we went to the park or out in search of an afternoon treat, I was worn down further by the process of getting everyone ready and out the door and of keeping my squirmy running toddler out of the street.

In the end, on those days when I simply could not roll out another pancake of Play-Doh or braid another head of doll hair or read Eloise Takes a Bawth one more time, I weighed my exhaustion and ill temper against the potential damage of the television and, against all advice by the American Academy of Pediatrics, we — gasp! — watched a movie. Continue Reading…

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Nevertheless, We Persisted

post-surgery-daughterFebruary is American Heart Month. My social media feed is currently split between political postings and photographs of babies and children with scars I recognize all too well — across the shoulder blade in back or right down the middle in front. Parents and grandparents I’ve met online through our shared journey are posting information about their children’s experiences, their families’ grief or triumph, and ways that their communities can contribute toward better outcomes for anyone born with a congenital heart defect, like my vibrant, finally-healthy daughter Sammi.

These images are unrelenting. They drag me back, every time, away from the image of the grinning, singing girl I kissed goodbye this morning and closer to the sick baby covered in wires and tubes. I negotiate the difference in leaps, then think back on what to say to the parents still in the thick of it. How will they make it to my present-day? 

Of course, the other half of my social media feeds are the political posts — assaults on freedom and confusing conflicts everywhere I turn. Truth is under attack there just as it was when I fought for Sammi’s care. Out of the mess tangling over and over itself in the news, however, came a surprise rallying cry intended to shut down a woman’s resolute message. To anyone who has followed US politics, the censure of Senator Elizabeth Warren by Senator Mitch McConnell is likely memorized by now, but for emphasis and clarity, it’s worth repeating:

“She was warned. She was given an explanation. Nevertheless, she persisted.”

It’s easy to turn this into a rallying cry for women, in general. So often, this is our only path to success, whether we’re discussing the fight for suffrage, land ownership, birth control, or just a seat at the board room table. What many women don’t know, however, is that infuriating as those indignities are, when what is at stake is our children’s lives, persisting is not a choice. It is an instinct. Continue Reading…

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When Being Right Doesn’t Matter, or Does

itmattersSomething was wrong with my baby daughter.

I said it to her pediatrician when she was just a few weeks old. He laughed at me, told me she was fine.

I said it in the emergency room when her chest and throat were retracting with her rapid breath. They gave her meds, watched her for a few days, sent her home with me.

I said it to her new pediatrician. She looked more closely, waited, told me to sleep-train her.

I said it again when everything failed, when she wouldn’t eat solid food, wouldn’t sleep through the night, couldn’t make it through a cold without hospitalization. And finally, finally, someone found the something. When they did, nobody said, “oops.” They fixed her congenital heart defect, the source of every problem.

I was right, but it didn’t matter.

Continue Reading…

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I Flashed a Pharmacist

I flashed the woman behind the counter at Walgreens one warm spring day in 2002.

When I say I “flashed” her, I mean that I lifted my shirt and revealed my torso, bra and all. And when I say “the woman behind the counter at Walgreens,” I mean the pharmacist. And I remember that it was a spring day in 2002 because I was very pregnant with my first child, and I remember that it was warm because the heat was aggravating the very rash for which I was trying, desperately, to get a tube of prescription steroid ointment.

Earlier that month, I’d been having lunch with friends of mine when one of them asked me, “So, why are you rubbing your belly like that all the time? Is the baby kicking?”

I looked down and realized that I’d been rubbing steadily, absentmindedly, at a patch of my 7-months-pregnant belly. When I thought about it, that patch was kind of itchy, and I told him so.

“I bet it’s crazy when your skin gets stretched like that,” he said.

I went home that night and noticed that the stretch marks on my belly were looking strange. They were 3-D now, little valleys on the landscape of my body, and in the area I’d been scratching, a few of them were now home to tiny red dots. I rubbed some cocoa butter into them and went to bed.

Over the course of the next week or two, the red dots spread. I tried more cocoa butter, but it didn’t work. I made sure I moisturized my belly several times a day, but that didn’t help either. It kept getting worse. After a few weeks, I went to see my midwife. She took one look at my abdomen and bit her lower lip.

“I’m so sorry,” she said. “It’s PUPPPs.” Continue Reading…

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