Fabio Napoleoni’s Hearts

Holding hands with my eleven-year-old daughter, Sammi, as we walked along the sidewalk earlier this week, my husband and older daughter just ahead of us, I saw bright colored paintings in the window of an art gallery ahead. The Atlantic Ocean to our left going dark and choppy under a setting sun, I called ahead, “Hey, look! Can we go in there and check it out?”

Sammi scampered in ahead of me and immediately said, “Woah!” The gallery was full of the bright colors of several painters working in primary palettes. Big multi-hued dogs and other animals covered one wall, and my daughters immediately spread around the space to look more closely. I started on one side, wandered, admired, turned around, and brought myself back to a particular wall covered by paintings and prints by one particular artist named Fabio Napoleoni. I was drawn to a series with a small mummy-like character — equal parts maudlin and endearing, and always holding a red, misshapen heart. That little character had many small adventures, all involving that heart:

Changing the Atmosphere – Fabio Napoleoni

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Paper and Breath

paperwork

 

I have spent most of the last two weeks in the grips of a terrible asthma flare, brought on by whatever powerful viral misery has a hold on the country right now. Though I’m not immune to illness — I get what I assume is the average number of colds each year — this one was particularly frightening for me, and I am convinced that it sent cosmic signals out into my community, since three separate friends left bottles of juice on my porch and ran like heck. As I curled under an enormous down blanket and drowned my tickling throat — which threatened constantly to send me into another bizarre, high-pitched coughing fit reminiscent of someone stepping on a puppy — I did little more than watch hours of television and poke half-heartedly at my phone from time to time.

This is not my normal position in the world. My normal life since children has been a patchwork of several kinds of activity: my part-time business in web site design and development (hire me!), childrearing, and housewifery. In the two weeks I spent on hiatus nursing my lungs along, I was able to pull a laptop onto the couch from time to time to douse the fires of my business, and my children managed to handle their own rearing at their ripe ages of 14 and 11. The housewifery, however, fell into the crevices between couch cushions, where it waited, growing funky and fuzzy with neglect.

Of course, I have a partner, a fantastic husband who is always ready to help — and he did. The dishes got done and the lizard got fed; children were driven where they needed to go when I could not summon the strength. However, there were several administrative tasks that I had intended to manage before the end of the year, and they began to weigh as heavily on my chest as the infection I was fighting. When I finally felt up to tackling them, I found it was literally The Last Minute, which, of course, is the most productive minute of any project. The most pressing of these tasks was the one billing-related job I’ve managed in our marriage since our younger daughter, Sammi, was born. This task, coincidentally, was born with her.  Continue Reading…

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Huddle Up

winter-1Every day, there’s something new happening that scares me.

In fact, every day, there are multiple things — here in the US, and other places in the world. It feels to me like we are balanced on a saucer held on the index finger of someone walking barefoot across a sea of marbles, and — moment by moment — people are plummeting over the edge. I wake up from my spot nearer to the middle of that saucer than 90% of the people on this planet, and I look at the news and try to decide where I will throw my tiny threads of possibility today.

It feels desperate. On the worst days, it feels ridiculous.

As this year ends, I am reminded of the years that my friends and family made contributions to causes that would likely never, ever affect them. Though I tried not to be a broken record, I did occasionally reach out to friends and family via social media and other means to support the charities working on research, advocacy and support for the conditions with which my daughter suffered. When her primary diagnosis was eosinophilic esophagitis, I asked for support for APFED, The American Partnership for Eosinophilic Disorders. After she had her second cardiac surgery, we suggested people make donations to Mended Little Hearts. These were good causes — they are good causes, and I’ll continue to support them even though my daughter’s health is no longer affected by these conditions — but the people we asked to contribute or share stories or raise awareness were likely largely oblivious to their existence before my daughter’s diagnosis awakened them.

In the last few weeks, the pitched voices of a number of needs in the wider world and in my community seem to have amplified. Part of that is due to #GivingTuesday, a campaign to encourage charitable giving after the materialistic trifecta of Black Friday, Small Business Saturday, and Cyber Monday. Part of the onslaught of need has also come out of the recent US presidential election, which has given rise to a level of societal panic I can’t remember seeing ever before in my adult life. Causes about which I care deeply — civil rights, women’s health, the social safety net, immigration and international diplomacy among others — seem to need support more than ever. I find my personal politics pinpointed perfectly as my friends add me to Facebook groups daily, my email inbox fills with requests, and every news story seems to offer me an action item.

This holiday season, there are so many bigger needs than those that affect my family. This holiday season, the needs affect my whole world.

I’m doing a few things differently this season, and while I don’t dare tell anyone reading this that my plan should be theirs, I’m finding it useful to think about what I can do to help in three ways:

  1. Actions that help the world
  2. Actions that help my community
  3. Actions that help my family

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Heart Exchange

child running

There’s a saying about becoming a mother that, for all its overuse and cliche, is as true as anything I’ve ever heard. It explains perfectly my own experience of mothering, one I’ve tried to capture and describe in other ways only to come back, finally, to this beautiful quote attributed to author Elizabeth Stone. In full, it reads:

Making the decision to have a child – it is momentous. It is to decide forever to have your heart go walking around outside your body.

Of course, it’s not exactly my heart that runs off each day with my children. Rather, it is an enormous portion of my emotional power, vulnerability, and grounding to the corporeal world that surrounds each of them when we part. There is a piece of my intention for each day that I lend to them, a chunk of my personal energy that I gladly give away in service to whatever they need. Shorthand: heart.

That floating bit of my spirit is something I trust to do what I can’t, shouldn’t, mustn’t in a world they need to learn for themselves. Like a blessing, I picture it keeping them safe. My promise to that end — the heart that goes walking around outside my body — is that the gift of it is irrevocable. I’ve told my daughters over and over that there is nothing they can do to make me stop loving them. They’ve sometimes tested me on this, asking what if I do this or what if I do that, but I always answer, “I will always love you, even if I don’t love the things you do.”

Even if I die? they have never asked, but I do know the answer. Yes, even if you die. Continue Reading…

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Three Days of Reckoning

stroller

When my now-eleven-year-old-daughter Sammi was still in my belly, I had a dream: a thin girl with straight, dirty blond hair and glasses, about nine or ten, was pushing a stroller at the zoo. I couldn’t see who was in the stroller, but something told me that pushing this stroller was very important for that young girl. Standing in place, her thin legs visible under short-shorts, she pushed her glasses above her eyes and wiped the bridge of her nose, then leaned forward, pressing her arms out and putting all her weight into the stroller. It rolled forward, and a gaggle of children I couldn’t quite make out ran and pranced around her as they moved toward the nearest animal exhibit.

That’s all the dream was — a girl I’d never seen pushing a stroller — and, at the time, I knew it was important but couldn’t quite figure out how. After all, I didn’t know I was having a second girl, and this baby in my belly had a round, dimpled older sister with a head full of huge dark curls.

But now, this week, I glimpsed a shadow of this image in real life. Sammi stood in a paper gown, waiting for the pediatrician. She had tried sitting on my lap in the chair, but her legs are now finally long and gangly enough that this is uncomfortable for both of us. I offered her the chair, but it was cold against her bare thighs, and she wanted to avoid the examining table until she had no other choice. So, she stood there: petite but solid, the plastic belt of the gown forcing the beginnings of a woman’s figure into my imagination, and I thought to myself: I really never pictured her at this age. Continue Reading…

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