Daughter, Whole

bat-mitzvah

Several weeks ago, my triumphant, thriving, sensitive and sweet daughter Sammi read from the Torah for the first time.

In the Jewish ceremony known colloquially as a “Bat Mitzvah,” my daughter consciously took her place in her community by chanting three verses of a chapter from Leviticus. Like all children who become a Bat or Bar Mitzvah (literally, a daughter or son of the covenant), she studied for months to learn the melody and the Hebrew words she’d be chanting and all the prayers she’d need to know to share leadership of the service and analyze the chapter of Torah in English. She has a lovely, clear voice, and she spent weeks with headphones on listening to the sound of her tutor’s voice chanting her verses, and singing along. I’d heard her practicing, but nothing really prepared me for the feeling I would have on the day she became a Bat Mitzvah, as I stood next to her at the podium as she chanted in front of the congregation of our synagogue and all of the friends and family who gathered to bear witness. It was not what I expected. Continue Reading…

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Ten Square Blocks of Everything

noimporta-swallow-my-sunshine

In front of my local police station, this sign in Spanish is prominent: No importa de dónde eres, estamos contents que seás nuestro vecino. It doesn’t matter where you come from, we’re glad that you are our neighbor.

I run past that sign sometimes, in the precious few months of the year when the temperatures outside are compatible with my asthma. The police station is a mile or so from home — ten blocks north — and it’s in the middle of a retail area I prefer to avoid on my runs, unless it’s very early in the morning and I won’t likely interrupt the commuters with their coffee and the college students with their hangovers. The first time I saw the sign, I thought wow, isn’t this a nice surprise? All over town, people’s Black Lives Matter signs were being mangled by anonymous angry people. A sudden outgrowth of more all-encompassing signs began to prevail:

IN THIS HOUSE, WE BELIEVE
BLACK LIVES MATTER
WOMEN’S RIGHTS ARE HUMAN RIGHTS
NO HUMAN IS ILLEGAL
SCIENCE IS REAL
LOVE IS LOVE
KINDNESS IS EVERYTHING

We have that sign. It covers more ground, but not as much ground as I can cover in a ten block radius around my house. Continue Reading…

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What You Brought Home

swallow-my-sunshine-brought-home

Dear Sammi Sunshine,

On the day that we brought you home from the hospital, we were nearly out of the parking garage when I remembered the milk — my milk, your milk, stored in the infant intensive care unit freezer. I’d been waking up every three hours for over a week to pump it and bring it in a little cooler to you each morning. I sprung out of the car, wincing from the cesarean section scar still healing on my abdomen, and went back into the hospital for it. It was the first thing you brought into our home — you, your tiny perfect self, and twenty-six ounces of expressed breast milk. Continue Reading…

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What I Was (Not) Thinking

In the fall of 2010, my younger daughter began kindergarten on a dairy-free, egg-free, soy-free, wheat-free, nut-free, vegetarian diet.

In late October, she got to add eggs back into her diet on a trial basis, and I learned how incredibly, incredibly useful eggs can be in managing a diet as challenging as hers. When we added back eggs, it made it possible for us to make these ridiculous — and I mean ridiculous — “pizzas:”

everything-free-pizza

Continue Reading…

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Twelve Years in Music

music-tools

I’ve loved music since I was a very little girl. My parents owned a record store before I was born; their music collection was spectacular, including every emblematic song of the 60s with rare gems thrown in. My earliest memories of their records are of the Beatles’ “All Together Now,” with its b-side of “Hey Bulldog,” a song so dark that it scared me. I can picture the green apple on the record label. I can picture the carpeted floor beneath me. I can remember the spot between the couch and the record cabinet where I sat and carefully edged the records out of their sleeves.

Like most people, my most powerful musical memories take me right back into the moment, bringing with them the smells and images and sensations that were present when the memories embedded themselves. In his fascinating book about music and the brain, the late neuroscientist Oliver Sachs wrote, “Music, uniquely among the arts, is both completely abstract and profoundly emotional. It has no power to represent anything particular or external, but it has a unique power to express inner states or feelings. Music can pierce the heart directly; it needs no mediation.”

These ten songs represent powerful piercings of my heart over the last twelve years of parenting my daughter Sammi, which was — as mothers of medically complicated children know — a more physical, spiritual, and emotional journey than the one I’ve shared with my older daughter. Of course there is powerful music to remember with her, too, but this music below served as survival tools in unique ways for Sammi and I. Perhaps these tools will help others, as well. Continue Reading…

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