Being a Child

being-child

More has been written about Atul Gawande’s book Being Mortal than on most other books on medicine and health, combined. It was reviewed in the New York Times, The Guardian, The Wall Street Journal, and dozens of other newspapers, magazines, and other publications large and small.  Its study of how the medical profession handles the process of dying — whether that process comes at the end of a full life or far too soon — has changed the national narrative. Doctors are coming around to the idea of supporting patients on their own terms as the end draws near, a concept which, to many, seems antithetical to their oaths. After all, are they not charged to “do no harm?” Gawande’s Being Mortal forces the discussion and redefinition of “harm.”

In an early chapter of the book, he writes that there are two kinds of courage. “The first,” he says,  “is the courage to confront the reality of mortality—the courage to seek out the truth of what is to be feared and what is to be hoped when one is seriously ill. Such courage is difficult enough, but even more daunting is the second kind of courage—the courage to act on the truth we find.” As he shares the stories of his own patients — choosing between risky surgery and an uncomplicated but speedier end; finding ways to maintain autonomy as they age; managing varying levels of discomfort while remaining lucid and cogent — it is clear that all the scenarios where his courage to “act on the truth we find” are predicated on the first courage to “seek out the truth of what is to be feared.”

In other words, there can be no action toward healing without first determining how his patients define healing. Continue Reading…

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10 Foods That Saved My Soul

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In 2010, my youngest daughter, Sammi, was diagnosed with a disease called eosinophilic esophagitis. Though it turned out that this diagnosis was incorrect, we didn’t learn that for three more years. During the first year of her diagnosis, we had to eliminate dairy, soy, eggs, nuts, and wheat from her already-vegetarian diet. During that time, these ten foods became the most important staples in my kitchen, making me grateful beyond anything I had ever known before. If you or someone you love is following the “six food elimination diet,”  these foods might be just the things you need, too. Continue Reading…

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I Will Miss You and I Will Miss Me

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In the autumn of 2009, when I took this photo, I was the mother of a four year old and a seven year old, walking to school hand-in-hand on both sides. My swirling girls danced in the kitchen each afternoon, fell to their soft bottoms on the hardwood floor and laughed, got up and did it again. I side-eyed the one who had yet to finish her milk and the one who distracted her, but there was so much joy every afternoon in that kitchen that I know I also joined in the dance. I worried and I danced. I leapt and I fell. The leaves outside our windows fell and fell.

“The trees are all naked!” my littlest one said, in shock, one day in late October, and I wrote it down in my list of cute-things-they-said.

We were always together, we three. Continue Reading…

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Ten Gifts I Didn’t Deserve

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In the years I’ve spent as a parent, I’ve been humbled hundreds of times. Sometimes one of my daughters has a proclivity the other lacks. Other times, the health challenges of one make me see the relative good health of the other as anything but a given. Most often, though, I am humbled by the ways I see the challenges of other children and families. The things I took for granted always, always, reveal themselves to be as symptoms of my own ignorance. I could make the list below almost endless, pages and pages of gifts that no one is guaranteed but that I — somehow, luckily — was given. I will never take them for granted again. Never. Continue Reading…

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I Was Always There

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I hate this picture.

I hate that my daughter — normally so sunny, so funny and vital and affectionate and bright — asked me to take this photo. She asked me because she wanted to keep a record of her time staying in the cardiac intensive care unit at the children’s hospital, where she was trapped after surgery to move her aorta from where it was crushing her esophagus. She asked me to take this picture — this haunting, heartbreaking picture — because I’d suggested that she keep a journal of each day, mostly so she could see herself getting better each day. I hadn’t anticipated that she’d be awake for the photos the first day. Somehow, though, she pried her eyes apart and did her best to smile, right there, as the sun was beginning to set on day one. Continue Reading…

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