I remember the August twelve years ago, after I finished a July of laying on the floor of my office, the door closed, my feet on the back of a chair, trying to turn my stubborn breech baby. I placed earbuds at my pelvic bones and played fiddle music in the direction I wished her head would face. When she turned finally, one night in late July, I felt every organ in my torso shift, roll and right itself again in one nauseatingly relieving motion.
In retrospect, it was a sign: with enough work, everything would eventually be repaired, over and over again. My girl, who always kept me on my back with legs in the air, directing my world from the floor, has now turned twelve, reaching down to offer a hand and pull me up. When I rise, she stands next to me and steps to one side to rest her cheek in the hollow between my shoulder and neck.
She’s grown. Improbably, in defiance, literally right under my nose now. Continue Reading…
Sometimes, I just have to laugh at the way the universe answers the questions I haven’t even asked yet.
It’s half-way through the summer of 2017, and here I am, suddenly aware that I live with one foot in the summer of 2010. I spent that summer in a cloud of specialty flours: tapioca and arrowroot, garbanzo and white rice and coconut and and sorghum. I sprinkled xanthan gum like a gluten-free fairy into all the creative ideas I had for how to make food for my daughter, whose health challenges required that she cut out dairy, eggs, soy, nuts, meat, and gluten. During my deep-dive into specialty cooking for what I called the “joy-free” diet, I dreamed in recipes and grocery store trips. Along the way, I picked up several dozen grey hairs, but I also became an unwilling expert on food challenges.
Though my daughter’s health issues resolved without any need for her to continue with food restrictions, the knowledge I gained never went away. In some ways, it’s not unlike a spare tool in the garage; though we seldom need that particular odd-shaped wrench, the neighbors know we have it, and they can borrow it any time. Even though we may have bought that wrench to put together a hospice bed or to tighten bolts in a subfloor that collapsed beneath our feet — and seeing it brings back every memory of that awful time — we’re glad it’s going to use for someone else who needs it. That wrench — my reluctantly-gained knowledge — shouldn’t go to waste.
Because of this, my friends call me when they need to follow an unusual diet or avoid a common food. And because I want to make lemonade out of those gluten-free lemons, I always help. Always. Continue Reading…
For ten summers, with varying frequency, I’ve been taking my daughters to the Saturday Farmers’ Market. In more ways than I could have ever expected, it has saved our sanity.
We began going to the Farmers’ Market as a way to preserve the parenting energy my husband and I needed. He and I made a pact after our second child was born: each of us would ensure the other got to sleep “late” (read: 8 am) one day a week. He slept “late” on Saturdays and I claimed Sundays. On Sunday mornings, he packed our squealing, chattering daughters quickly into the car — sometimes in their pajamas — to go to Home Depot, which was sometimes the only place open on Sundays. There, he handed them paint sample cards to carry and let them touch all the doorknobs while he mused over the varying bolts and power tools that just might be required for his next renovation project in our old townhouse.
On Saturdays, I took the girls to the Farmers’ Market. It opened at 7:30 am, and some Sundays, we parked our car in the tall parking garage overlooking the Market and watched as the farmers set up their stands. Had we stayed home, I would have been aggressively shushing them, desperately trying to give their father the sleep he’d earned yesterday in the dawn at Home Depot. Out of the house, I somehow discovered the reserves to be patient.
Sitting around the sticky table of a local frozen custard shop are my daughters and husband, each of them with a mountain of gooey dessert: piles of custard under clouds of whipped cream and rivers of fudge. My younger daughter, aged 5, is grinning ear-to-ear. I’m snapping pictures like the mother of a baby trying solid food for the first time. At one point, I step outside to breathe the fresh air of a world restored.
For the ten months prior to today, my little girl has been on a path to discovery, she and her team of doctors searching for the food protein that’s causing the strange patches of white blood cells in her esophagus, the patches that were keeping her from swallowing well. For ten months, she’s been avoiding a list of common allergens — dairy, soy, egg, nuts, and wheat — and undergoing tests to see if the culprit could be found. Earlier today, we got the news that only one food was left to be added, since all the others had seemed to cause her no ill. Adding that last food — dairy — means that she can eat out at any restaurant she liked. It means that, for the first time in ten months, we can travel without worrying about her food.
We leave the frozen custard shop and embark immediately on a road trip. We feed her everything she’s been missing: restaurant pancakes with butter and syrup, cheese popcorn, candy bars, pizza, string cheese and yogurt. For the first time in nearly a year, I don’t carry a big insulated bag full of food for her. We rejoice, but under the rejoicing is the knowledge that this is just another food trial. It’s both a first meal and a last — this is the last food trial, and everyone expects it to be a failure.
Many years ago, before I had children, I joined the staff of a large nonprofit organization as what I thought would be a relatively insignificant cog in a mighty machine. Instead, I was surprised when my new boss put me in charge of a committee to plan a big redesign of the organization’s enormous web site. I’d never sat on a committee or even attended a committee meeting before, but my boss said it wasn’t hard. I trusted her.
What followed were were months of meetings and planning sessions. We interviewed vendors, discussed budgets, and were deliberate in our choices. We began the nearly inconceivable task of moving tens of thousands of pages of content from one system into another, page by page, which took hundreds and hundreds of hours. For the unappreciated staff members who were responsible for their departments’ pages, I threw “parties” in our training room and fed them cookies while answering their technical questions. During that time, I went home each night to my first baby, who was born in the early stages of the project’s conception and who turned one just before the new site launched.
The launch was an unmitigated disaster.
The staff was thrilled to have it complete, but we had missed a major consideration. Though we had been thorough amongst ourselves, the organization for which we dozens of staff members worked was a professional association. Our members used this web site for their work — for reference, for activism and advocacy, and for their own teaching tools. They were our most important stakeholders — and we hadn’t asked them a thing about the site before it launched, a fact which they — appropriately — did not take well. After an onslaught of angry emails, the director of the organization flew several board members and a dozen other influential general members to our office on a Saturday. I kissed my baby girl and my husband goodbye and went into the office.
I was 28 years old. I had never met a member of this organization before. I had never been to a board meeting. Continue Reading…