What We’re Accommodating This Thanksgiving

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So many people have told me over the years that they couldn’t possibly handle the strange and restrictive diets my family has had to face and ALSO host a holiday meal. It’s true that doing that is really hard: do we make three of everything? do we tell the family members with allergies to bring their own food? do we pretend we don’t even know and make them deal with it? 

Well, it’s doable. If you want to do it, it really is.

This Thanksgiving, my family is accommodating, in no particular order:

  1. Vegetarians
  2. People with lactose intolerance
  3. People who cannot eat whole grains, nuts, seeds, or berries
  4. People for whom Thanksgiving would be a travesty without the traditional fixings
  5. People who don’t care what they eat

Here’s what we’re making; if you want any of our recipes, just let me know in the comments! Continue Reading…

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Trigger

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She was sitting on the couch facing me when I opened the door to the apartment. In a deep-cut v-neck t-shirt, beaded necklaces dipping into her cleavage, my roommate asked me why I’d put the ironic knick-knack I loved back on top of the stereo speaker.

“Because I think it’s funny,” I said.

“But you know I hate it,” she answered, her fingernails pressing into her thighs.

“I know,” I answered her, clutching my backpack, “but you do a lot of things that I hate, too, and you don’t seem to care. Why should I?”

“So you put it up there for revenge?!” she asked, still sitting. I watched a patch of red begin to creep up from between her breasts into the v of her shirt.

“Basically, I guess?”

“You know,” she said, rubbing her hand along the knee of her jeans, “I sometimes come home at night when you’re sleeping, and I stand outside the door to your bedroom, and I have to force myself not to come in there and beat the shit out of you in your sleep.”

“You’re crazy,” I answered, staring at the french doors to my room, and then at her neck, which has grown crimson to match her chest. “That’s what a crazy person says.”

“I’m not crazy. I just hate you.” Continue Reading…

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This Is Not Normal

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Yesterday, my daughter Sammi went under general anesthesia for the nineteenth time.

The surgery was minor compared to some of the others she’s faced, and I wasn’t worried about it going poorly, but the moment I stepped off the elevator into the hospital corridor leading to the Pediatrics ward, I felt something in the air settle on me and seep in. It was familiar, heavy and soft and warm. It had a smell — cleansers covering up disease — and a visible quality like steam just moments before it evaporates completely. I walked through yellowish, dim light, floors and walls an indeterminate shade of grey or green or beige. There’s a haze to the air, and a weight. I felt something gently pushing on the top of my head and my shoulders. Gravity is more powerful on a hospital ward.

I’d forgotten that. Continue Reading…

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Songs in Turns

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“OK, it’s Papo’s turn,” I say, turning in my seat to look at him, his hands on the wheel, eyes straight ahead. “What song would you like?”

“I’d like a nice surprise,” he says, emphasizing nice so that I don’t tease him by playing Sufjan Stevens, whose voice sets my husband on edge. He’s patient with me and my scrolling, trying to decide. So many songs make me think of him, but on this — and maybe only on this — I’m the over-thinker. In the end, I choose a Billy Joel song from the 1990s for him, an upbeat tune I know he likes, a song with a rhythm that seems to hide the wistfulness of the lyrics about searching forever in the water, in the valley, for something sacred, undefined, and lost. My husband, at my side for twenty-five years now, sings along, the crinkles at the edges of his eyes pressing each other. I tangle my fingers in the curls at the nape of his neck, content to be here next to him as he drums the steering wheel with the side of his hand.


The song ends, though, and it’s my older daughter’s turn. She has put her mountain of hair into an enormous bun; is knitting another smart-phone cozy in her lap. Her eyes look up as she considers, and I remember reading Junie B. Jones with her, when Junie B. (“the B stands for Beatrice, but I just like B, and that’s all!”) says “Mother rolled her eyes and looked at the ceiling. I looked up there, too. But I didn’t see anything.” And there she is, my no-longer-first-grader, no-longer-middle-schooler, almost-college-girl looking at the ceiling, too, trying to decide. I wish I could see inside to guess what she wanted, like when the choices were all songs from The Muppets. Eventually, she says, “Satisfied. And I get Angelica’s part!” She tips her head back and so much sound comes out, so much bravado and beauty, loud held notes, anger, love, desire, somehow accessible in the soul of a girl who used to twirl her finger around one curl as she sucked her thumb. I remember that dreamlike candlelight, like a dream that you can’t quite place… And the world goes by outside her window, so fast I can’t even make out the shapes of the trees.

“Your turn, Sammi,” she says as the song fades into its last notes.

She’s been waiting, my littlest one. She’s clear as a brand new glass of water, ready with her answer. “Scars to Your Beautiful,” she tells me, and I think of course. She’s literal and poetic at once, the message below the surface of her middle school drama and also, of course, right there on her shoulder blade, slit through twice as doctors pushed her rips apart to get to her aorta. The world, I want to tell her, might never change its heart, might always look right over her head at the space above her stature, might look past her unless she leaps into their view. The heart that needed to change was hers, will always be hers. Let me be your mirror, help you see a little bit clearer… But she sings along, trying hard to bring her bell-like voice above the belt of her sister’s. The growing band of bracelets on her wrists slide up and down, her finger curled into one rubber one from camp, a lifeline to people who understand her. I reach my hand back along the door and grab her ankle. She puts her hand on top of mine.

When the song ends, I’m ready with my choice, having considered it carefully. I’m always thinking through a series of eventualities: what will happen then? what will happen if I choose this? that? who will like it? who will sing along? who will listen and fall in love and ask for it again? who will be offended, inspired, bored, annoyed? I’d ruled so much out, scrolling through my lists, but here was just the thing for a rainy day on a road trip, a cover of something nostalgic, a version by William Fitzsimmons of Sarah McLachlan’s “Ice Cream,” dedicated to the precious cargo in the seats around me.

Your love is better than ice cream
Better than anything else that I’ve tried
And your love is better than ice cream
Everyone here knows how to cry

And it’s a long way down
It’s a long way down
It’s a long way down to the place where we started from

I wish I could touch all of them at once, but in the car, I can only reach one at a time with my hands. Instead, as I sing, I send tendrils out from my heart, bright ropes of light that encircle each one, snared forever, energetically connected to me as I tell them that nothing, nothing is better than them, nothing, not ever.


This has been a Finish the Sentence Friday post, hosted by Kristi of Finding Ninee, with the prompt “Road Tripping.”

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What I’m Learning: Part Five

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Slowly but surely, I’ve added to my knowledge and understanding of how the practice of medicine — and the cultural norms around it — are affecting the humans involved. This isn’t just about the patients but about their families, the doctors and nurses and therapists and receptionists, all the people who form the ladder from illness to healing. I’m grateful that there are so many good stories available and also so much strong, fascinating writing of a more clinical nature. I’ve written about the book-length writing I’ve read in a series of posts I’ve called “What I’m Learning.” I wrote first about Gavin Francis and Jill Bolte Taylor, then about Seth Mnookin and Henry Jay Przybylo, then about Susannah Cahalan, and, last week, about Atul Gawande and Heather Armstrong. The authors range from doctors to patients to researchers. What I was missing in all these stories was a character I could look at, hold up my own hand, and watch her raise hers in the mirror.

I was looking, fruitlessly, for a medical story told by a parent. And this fall, I finally found one.

Continue Reading…

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